Thursday, June 5, 2008


So it's no secret that I've really been pretty down the past few weeks. I know, like always, I'll roll out of the gutter and get back to being myself...but right now....I"m just having a really hard time bouncing back.

That being said....I just couldn't resist sharing this with everyone.

Today, after 1 meeting with the school liasion (which didn't exactly go well), 1 speech therapy session, and 1 two hour Early Intervtion playgroup....I was feeling pretty drained, and really needed a pick-me-up. I decided to head to Starbucks (and order a very large iced coffee with lots of sugar!) before going home and finishing the day.

So we're waiting in line, and as I'm telling the barista my order....Ava screams "GET MOMMY'S COFFEE". I just couldn 't stop laughing! I guess it was obvious even to my 2 year old who had been examined and in therapy literally all day....that I was the one who needed something.....RIGHT NOW!!!

As stressful, and heart breaking as things can be sometimes....I sure do love having another little one. She might not be perfect, but at times, I just have that overwhelmeing feeling that she's exactly who she's supposed be. I don't know what the future holds for her, but something tells me.....she'll handle it just fine.

With a little coffee....I might just be o.k. too.


Sophie's Story by Elaine said...

I found your blog through a link on Trevor's blogpage. Your post totally hit home. Why is it that coffee can sometimes make it all if you are just about to go over the edge and lose it but the coffee calms it all down!!! I feel the same way about my daughter Sophie as you do about Ava...she is who she is and I love her for all her quirks. Hopefully you will roll out of the gutter sooner than later.



Anonymous said...

I love the latest and greatest picture of Ava! My heart really goes out to you, especially living with it with Trevor. I think of you often.

Trevor's Grams

About Ava

Ava Simone LaBonte was born December 1, 2005, a healthy baby. She was a happy, healthy, normal baby until six months old, when we noticed some odd movements, which we thought were exagerated startles. Ava had her first EEG at 6 months, and it was normal. Six weeks following the EEG, Ava began having head drops....and we knew this time, something would show up.

At 8 months old, Ava was diagnosed with Infantile Spasms, a rare form of epilepsy. She was treated immediately with a 4 week course of ACTH. Ava spent 6 weeks "seizure free". All of Ava's MRI's, CT's, and blood tests have been "normal".

On November 20, 2006, Ava had a grand mal seizure which could not be stopped, and she was put in a drug induced coma. We left the hospital on antiepileptic medication, and have been on medication ever since. Ava is currently diagnosed with Generalized Epilepsy.

So far we've tried the following medications: ACTH, Trileptal, Keppra, B-6, Depakote, Carnitor, and currently on the Ketogenic Diet.