Saturday, January 12, 2008

The Keto we come

It's now less than 48 hrs. before Ava will be admitted to Hasbro Children's Hospital to start the Ketogenic Diet for her seizures. Ava has anywhere from 10 to 40 "mini" seizures per day. They last about 3 seconds, and she falls forward quite often because of these seizures.

All this time I really thought I was ready for another hospital admission, but I think we all forgot how stressful a hospital stay is. I guess there is just no way to prepare...just jump in head first.

No comments:

About Ava

Ava Simone LaBonte was born December 1, 2005, a healthy baby. She was a happy, healthy, normal baby until six months old, when we noticed some odd movements, which we thought were exagerated startles. Ava had her first EEG at 6 months, and it was normal. Six weeks following the EEG, Ava began having head drops....and we knew this time, something would show up.

At 8 months old, Ava was diagnosed with Infantile Spasms, a rare form of epilepsy. She was treated immediately with a 4 week course of ACTH. Ava spent 6 weeks "seizure free". All of Ava's MRI's, CT's, and blood tests have been "normal".

On November 20, 2006, Ava had a grand mal seizure which could not be stopped, and she was put in a drug induced coma. We left the hospital on antiepileptic medication, and have been on medication ever since. Ava is currently diagnosed with Generalized Epilepsy.

So far we've tried the following medications: ACTH, Trileptal, Keppra, B-6, Depakote, Carnitor, and currently on the Ketogenic Diet.