Well, we're day 5 into the diet and things are going pretty good. We noticed about 5 or so eye rolls this morning, but no falls. She had tons to drink during the night...so we're going to cut back on her drinks tonight to see if all that extra fluid affected her seizure control.
Poppie came over for dinner last night, and couldn't believe how nice it was to not be constantly worrying about Ava falling. We've been letting her walk up and down the stairs and not stressing about her going into the bedrooms by herself.
I usually hesitate saying things like this after all we've been through.....but I really feel like we have our lives back!!! Ava was having anywhere from 15 to 40 falls per day before the diet. She even had a pretty nasty partial our first night in the hospital. We're all just in total awe of the extreme change in seizure control we've seen in less than a week, even with a few minor ones popping in.
She hasn't fallen one time since we left the hospital (that was seizure related)...although she has had no problem tripping over her toys. She did, however go out of her way to pick an old french fry out of a crevis in our car and gobble it down before my arms even moved!
Thank you to everyone who was praying for us, and to everyone who encouraged us.
It's just one day at a time.
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1 comment:
I'm SO happy, Rebecca! I know how you guys were praying before Ava started the diet! And I'm just SO happy...
and the french fry - too cute!
...danielle
www.trevorshope.blogspot.com
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