Friday, January 18, 2008

We're Home!!

We're home!!!! After five long days...we're finally home! After all our hesitation about starting the diet at Hasbro in Providence....it all worked out. Ava spent the first two days hypoglycemic and went in ketosis so quickly she became pretty acidocic, but with a few cc's of apple juice and some meds to control the acidosis...we were in business. She completely refused any food or fluid for day 2 and 3...and we were really beginning to think this might not work.

After clocking in some serious time in the chapel *LOL* and some serious patience (and a visit from her brother and sister) she finally ate. She threw up the food immediately....but it began her eating, and we've been on track ever since.

I'm definitely too tired to write anymore...but here's a few pics.

As much as we thought we were ready....it was a lot harder than we thought.

3 comments:

baby trevor's mommy said...

It shouldn't be possible to be happy & sad at the same time! But I am...
I'm happy that you're eating Ava...and no seizures so far today.
But I'm SO sad that you're having to live this!
And whoo hoo for mommy for getting this blog up & running! Love it Rebecca! The kiddos are too cute!
...danielle

Areina said...

Holy Cow! Who is this adorable child I see? Could it be... BOO BOO? Why yes it is, and the whole Cabezas clan is cheering our little Boo Boo. Love you bunches and good work on the blog. like Danielle said above me, WHOO HOO!! Becca, you a pro or something? Computer nerd? lol We love you guys and wish the best for our family "up the road"... Kisses to my little buddies M and C... And of course a shout out to "boo boo". lol again... okay love yas bye!

Kara said...

Hello everybody, so glad to see you!
Hello everybody I’m so glad to see you!
Hello to Ava, so glad to see you!
Hello to Ava, so glad to see you too!

We love you Ava and your Mom too!

Love your Friends,
Kara & Avery

About Ava

Ava Simone LaBonte was born December 1, 2005, a healthy baby. She was a happy, healthy, normal baby until six months old, when we noticed some odd movements, which we thought were exagerated startles. Ava had her first EEG at 6 months, and it was normal. Six weeks following the EEG, Ava began having head drops....and we knew this time, something would show up.

At 8 months old, Ava was diagnosed with Infantile Spasms, a rare form of epilepsy. She was treated immediately with a 4 week course of ACTH. Ava spent 6 weeks "seizure free". All of Ava's MRI's, CT's, and blood tests have been "normal".

On November 20, 2006, Ava had a grand mal seizure which could not be stopped, and she was put in a drug induced coma. We left the hospital on antiepileptic medication, and have been on medication ever since. Ava is currently diagnosed with Generalized Epilepsy.


So far we've tried the following medications: ACTH, Trileptal, Keppra, B-6, Depakote, Carnitor, and currently on the Ketogenic Diet.